Your community is pretty sizable — you’ve got over 50,000 people in Beyond Type 1 and nearly 500 people in Beyond Type 2. How do you manage that many people?
Tiana: When it comes to moderating, that number does make it a little bit more tricky, because there’s more that we have to look out for. But we have our guidelines. And if anything violates our guidelines, we usually do get reports. And that’s just because we have a few people on the app that are very dedicated to reporting stuff when they see it, flagging things.
Dana: Our number one featured post is some guidelines for acceptable posts, but also guidelines for when to flag something. We’ve really leaned on that to be able to always say, “Hey, if you see anything, please flag it.” And we do our best to make those guidelines super prominent and really clear, and we keep adding to it. So, for example, if we just keep having situations come up around politics, we’ll add a bullet point [in the guidelines] that makes it really clear that we’re not talking about that. That’s been super helpful.
What has been the biggest surprise since you launched your community?
Tiana: I think the biggest surprise has been the organic growth and the organic conversations that have been happening. It’s been really cool just to watch everybody interact with one another. And it’s been really hands-off for the most part, on our end, even for the Beyond Type 2 app which we launched [much more recently]. Two weeks in, people were already in there, communicating with each other, and being like, “Wow, I really needed this space. I really needed a platform to come and connect with other people with Type 2.”
Dana: Another lovely thing that has come out of it, has been the way that people are connecting across identities, certainly in the Beyond Type 1 app. Tiana and I were looking at examples before this, and we were talking about one where a teenager posted their perspective and shared the specific challenges of being a teenager withType 1 diabetes. And a bunch of the comments on that post were from parents of four and five years old, who are like, “Wow. I have been so concerned about the future of my child’s diabetes because I know it gets more complicated when you’re a teenager, and that freedom, navigating care. It’s a really challenging time.”